National Database

The TBI Model Systems National Database

Some patients who enter the Brain Injury Program at Spaulding Rehabilitation Hospital Boston and Spaulding Hospital Cambridge are eligible to anonymously contribute their data to the TBI model systems research database. The objective of this project is to build a repository of data that will aid future TBI patients, as well as their families and clinicians. Researchers from all across the nation conduct studies using the information housed in this database.

The database is over 20 years old and houses information from over 12,000 patients. Information collected for the database includes medical history from before the injury, as well as details of the patient's hospital course. Researchers obtain information through medical records, a questionnaire, and a brief bedside test. Researchers also conduct follow-up phone interviews every few years to follow patients for life. The information collected remains confidential. 

Click here to see a list of other sites currently contributing to the growing national database.
 
This study presents a great opportunity for patients to help future patients and clinicians with minimal effort and no risk to themselves. Many studies have been published using the database. Some of these studies are listed in the PDF below:

Publications using the TBI Model Systems national database

 

Principal Investigator: Dr. Joseph T. Giacino, Ph.D.

Study Contact: Cecilia Carlowicz- This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Population: Patients who have suffered a TBI, were admitted to Massachusetts General Hospital or Brigham and Women’s Hospital Emergency Department within 72 hours of injury, and are 16 years of age or older

Time Commitment: Minimal. Pre-Injury questionnaire/interview administered once during hospital stay lasts less than 30 minutes; neuropsychological testing administered once during hospital stay lasts approximately 30 minutes; Follow-up phone interviews administered 1 year, 2 years, 5 years, and every 5 years post-injury last approximately 30-45 minutes.